Phillip Riley (41), Nicole Riley (43), Chloe Avants (15) and Jaxson Riley (9) at their home in South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson Riley (9) had his first seizure episode in February of 2020. A year after he was diagnosed with epilepsy and gray matter heterotopia in his front left frontal lobe. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson Riley (9) names his pillow Hammy that he uses on his wheelchair. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson's medical kit is held by his mother. Her tattoo on her wrist means I will not abandon. South Berwick, Maine on Sunday, March 31st, 2024.
Fighting for his son's life meant that Nicole Riley (43) would have to go against many doctors that did not believe his son was sick from long Covid, trusting her instinct that her son was suffering from long Covid. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson (9) plays with a toy gun in the yard, South Berwick, Maine on Sunday, March 31st, 2024.
Nicole (43) and Phillip Riley (41) have been struggling financially since Jax started having side effects because of Covid. Nicole is 100% dedicated to Jax wellbeing. South Berwick, Maine on Sunday, March 31st, 2024.
Phillip Riley (41), Nicole Riley (43), Chloe Avants (15) and Jaxson Riley (9) at their home in South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson Riley (9) had his first seizure episode in February of 2020. A year after he was diagnosed with epilepsy and gray matter heterotopia in his front left frontal lobe. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson Riley (9) names his pillow Hammy that he uses on his wheelchair. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson's medical kit is held by his mother. Her tattoo on her wrist means I will not abandon. South Berwick, Maine on Sunday, March 31st, 2024.
Fighting for his son's life meant that Nicole Riley (43) would have to go against many doctors that did not believe his son was sick from long Covid, trusting her instinct that her son was suffering from long Covid. South Berwick, Maine on Sunday, March 31st, 2024.
Jaxson (9) plays with a toy gun in the yard, South Berwick, Maine on Sunday, March 31st, 2024.
Nicole (43) and Phillip Riley (41) have been struggling financially since Jax started having side effects because of Covid. Nicole is 100% dedicated to Jax wellbeing. South Berwick, Maine on Sunday, March 31st, 2024.
Sofia Aldinio Visual Storyteller
Sofia Aldinio is an Argentine documentary photographer and multimedia storyteller.